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July 17, 2018
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JULY

07/02   E-BOARD MEETING - JULY - 5:00 PM

07/12   UNION MEETING - 6 PM

07/13   MARYLAND RETIREES BREAKFAST

07/26   VIRGINIA RETIREES BREAKFAST

07/30   E-BOARD MEETING - AUGUST - 5 PM

AUGUST

08/09   UNION MEETING - 6PM

08/10   MARYLAND RETIREES BREAKFAST

08/17   RETIREES BRUNCH AT THE HALL

08/23   VIRGINIA RETIREES BREAKFAST

08/27   E-BOARD MEETING - SEPTEMBER - 5PM
 

Bringing Light to the unknown
Posted On: Nov 01, 2017

In speaking with one of our brothers, Mr. John Nichols, I learned that John has a very beautiful young daughter who just turned 18.  I had no idea that Savannah deals with a very devastating neurological disorder that is called Rett Syndrome.  Very healthy babies are struck, out of the blue, with very debilitating health issues.  This disease attacks females exclusively due to a mutation on the X chromosome.  Around the age of 2, (Savannah was 16 months) some a little more and some a little less, beautiful, healthy baby girls lose the ability to speak, control their hands and in most cases, can no longer walk.  Breathing problems, seizures, inability to chew and swallow food, anxiety, and orthopedic issues are also common.  These bright, happy, beautiful baby girls become trapped in bodies that no longer function the same, but along with this terrible diagnosis comes concrete evidence that it can be CURED.  Lab experiments have proven that when the gene mutation is corrected, symptoms can disappear.  Most people have never heard of Rett, so we are trying to educate as well as ask for your help in funding more research.  Please click on the website below and see a little video.  This month, supporters of Rett research are wearing their clothes backwards in support of the fact that Rett can be REVERSED.

https://rettgive.org/projects/reverse-rett/ is the website and video.  Please help us and Savannah, bring more attention to this disease and possible treatment.


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